This blog is not about children with Asperger’s Syndrome. This blog is about being Dads and Moms of children with Asperger’s Syndrome. Mostly it’s about parents with children who have extraordinary needs, but my guess is that all Dads and Moms can relate in some way to the emotions of raising kids. It seems to me though that having an Aspie (person diagnosed with Asperger’s Syndrome) magnifies these emotions tenfold.
I write this in love and I send this with the hopes and intention to end the isolation I have felt and have witnessed other parents feeling.
My greatest hope for these stories and posts is that you feel a sense of belonging, even if our connection is so very different from other groups of people, we’re all in this together, thick and thin. The stories you’ll read are about my thick and my thin. This is my story. This is our story. This is the story of our high need kids. And this is how I deal day in and day out. My story is perfect right where it is.
Those of us who are parents of high need children have a different reality that those who do not. Yes, we’ve all got hard days. It just feels so much like being a parent of an Aspie is a non-stop around the clock waiting for the ball to drop existence. There’s no ‘breather’ in an average day. None. It’s panic if you don’t know where you’re cell phone is. Its panic changing plans. It’s panic when a message from a teacher comes in. And I know the art of Zen, I’m actually pretty good at it. I’m probably a freaking’ expert by now because I’ve had so much panic, I only have room for peace left.
I’m a mother of two beautiful boys. One has a different brain. They both have rockstar long hair and so they look like girls. I figure I have the best of both worlds, I don’t have the high-pitched screaming that some girls do and yet I can still braid hair.
I don’t care for the term ‘Asperger’s Syndrome’, so for now I term my son and all those like him “Different Brained”. 🙂 You can see me now on YouTube under the channel name ‘DifferentBrain‘.
I have felt completely alone and baffled for most of my life with my different brained son. Judgment felt ubiquitous and not knowing seemed an absolute.
And then I met my tribal sisters, the other moms who ‘get it’ and have one of their own. I can share all of my stuff with them. I know they truly understand and don’t judge me. They have been more helpful than any therapist, drug or whatever else helps us parents cope, accept and ultimately thrive.
And now I share with you.